#Loganstrong

Unfortunately we are not sure if Logan will be admitted on Monday.  Logan and Kelly spent most the day at the hospital but some miscommunication has left us not knowing what’s next.  We are awaiting a call from his team.  He did receive platelets today.  He is close to needing blood and his ANC is pretty low so they/we will keep a close eye on that.

Yes, you can read into this post…we are a bit frustrated with the communication.  We know that Logan is not the only patient…but he is our TOP priority.  When there is a lack of communication we get extremely frustrated.  So right now plan is to admit Monday, but we are not sure.  Logan of course is cool with whatever.  He would actually prefer to wait another week to gain back strength.

We know that he is under some of the best care in the world….We as any parent want ALL of their attention.

I will update everyone when I find out more.  In the meantime Logan is enjoying Xbox time:).

#loganstrong

Everyday is a little better than the one before.  Although still pretty weak Logan is now back to playing Xbox and spending a little time with friends.  He is also eating great which we all love!

On Friday Logan & Mom went to Seattle for a blood draw and to continue to discuss next steps with Logan’s team of doctors and nurses.  Logan’s blood results maintained and he did not need any transfusions.

So the plan is for him to do the antibody treatment again next week.  The team will alter his medications and the duration he receives the antibody.  The goal is no hallucinations and quicker recovery time.  They will be administering the antibody over a 10 hour span vs. the 20 hour span last time.  They are going to try a different pain medication than morphine.

Unfortunately the chemo Logan received this last time is causing him to lose his hair.  This, as you can imagine, is very upsetting for a 14 year old teenager.  He asked for his head to be shaved….I think he still is handsome as ever!

#loganstrong

Logan continues to feel pretty weak and tired.  He met with his doctor today at Seattle Children’s Hospital and recapped last week while he was admitted.  His main doctor, Dr. Julie Park, was out on vacation while he was in patient.

She is very concerned with how he responded to the antibody treatment and the side effects he has experienced.  Mainly the hallucinations and the recovery time to gain his strength back.

Over the next couple weeks (before next scheduled admittance) we will continue to partner with Dr. Park and her team how we should proceed.  She is concerned his body possibly cannot handle more treatment.

One day at a time…..

#loganstrong

Sorry I did not update yesterday.  Logan and I got back home last night.  He received lots of fluids and platelets.  Both made him feel a little better.  The platelets made the rashes/spots on his body go almost completely away.  He is still pretty weak but hour by hour getting stronger.  We even managed some Xbox time last night.  Today the plan is more rest.  Tomorrow he has a check-up with Dr. Park to discuss last weeks treatment as well as moving forward.

Thank you ALL for the thoughts and prayer….

#loganstrong

Logan woke up this morning still very weak and still a rash all over his body.  He was able to eat some scrambled eggs but remains very tired.  Kelly called his team of doctors and they wanted to see him ASAP.  I left work and we rushed him up.  Nurses took blood and rushed results (has them back in 7 minutes).  As they expected he is very dehydrated so he will be getting fluids.  His platelets have also dropped VERY low.  That is the reason for the rash.  The rash is actually a bunch of tiny little bruises.  In fact the nurse took his blood pressure here this morning and instantly he had the rash on his arm.  Hopefully we will leave here today with Logan feeling A LOT better….fingers crossed.

#loganstrong

Logan & Kelly are home….finally!  It was a rough last couple of days….very rough.  Logan continues to have a temperature of around 103 and a rash all over his body.  This is common for the antibody treatment but scary for all involved.  He has also been hallucinating and waking up from dreams terrified.  Last night in particular he thought he threw his little brother Peyton off a building and he could not stop crying.  He was so hysterical it made him sick.  Kelly has not slept in 2 days so being home is also good for her.  If his temperature does not go back down by tomorrow night he has to go back to the hospital.

Thank you all for thoughts and prayers….

#loganstrong

Logan (and his mom) continue to amaze with their strength.  The antibodies, chemo, and drugs have definitely taken there toll.  Logan is sleeping about 18 hours a day.  His average body temperature has been between 103 and 104 degrees.  This is common with this treatment.  He also is having some low blood pressure readings which cause the nurses/doctors to pay him more visits and wake him up.  He takes it all in stride and continues to smile.  The above picture is him outside watching the Blue Angels practice.  The nurses were amazed he had the strength to get out of bed.

The plan right now is for Logan & Mom to come home Saturday.  Peyton and I cannot wait:).

Please hug your kids tonight….#loganstrong

Great weekend spending time with friends and family.  We had a blast at the Great Wolf Lodge for Peyton’s 9th birthday.  The kids went non-stop!  You would never guess Logan is fighting cancer if you met/saw him.  He feels and looks great!

Today Mom & Logan made the trip north and were admitted for the week (possible discharge Friday or Saturday).  He started his chemo at 10:30am PST that will last 90 minutes.  This will then be followed by a red cell transfusion as well as constant hydration.

Tomorrow he will start chemo about the same time followed by the antibodies.  They will infuse the antibodies over about a 20 hour period.

Logan’s platelet counts remained the same but his white cells are dropping.  These are the “fighter cells” so it is likely they are battling his cancer.

Thank you everyone for the the much needed thoughts and prayers.

#loganstrong

The cancer is growing again in Logan’s body.  If you recall at one point during treatment he was down to a spot that held a rating of a 1 on a scale of 1-30.  Last July 2015, he was a 29/30.  He is now a 15/30.

What does this mean?

Since his platelets are not above the required 50K to enter other trials, our only option is a treatment called Chimeric 14.18 Antibody.  He actually did it initially when diagnosed when he was 6.  Doctors have modified it briefly, but it is pretty much the same treatment.  He will be admitted Monday for 6 days.  Then he will take a 2 week break.  He will do the same treatment and take another 2 week break.  We will then re-scan and see if this is working.  If he does respond this treatment can last up to a year.  This treatment can be very painful as it can effect the nervous system.  They will be giving Logan Morphine along with the treatment.

Logan continues to amaze us with his positive attitude.  When asked by the doctor what he wanted to do…without hesitation he said whatever is next.

Right now we struggle with….everything.  Summer, School, Work, Life.  It Sucks.

#loganstrong

Lake Chelan with friends and family was amazing!  He joked around holding my beer above;).  He also learned to shoot a 9mm and did awesome!

Logan had a blast and went non-stop from the time he woke up until bed time.  You would never guess that cancer is present inside his body.  Last night I laid in bed and wondered why can’t we just control it and continue to live a somewhat normal life like we are?  I just don’t understand the beast called cancer.

Today & tomorrow Logan & mom make the hour plus trip north to Seattle Children’s Hospital and Logan completes all of his testing to see where we are at with platelet counts as well as where the Neuroblastoma currently is.  Where we go from here…..who knows.

Many feelings….frustrated, inspired, mad, confused, exhausted.

#loganstrong