We met with Logan’s team this morning via conference call. Currently we are all in agreement for Logan to continue being a teenager and enjoying the daily activities that accompany that i.e. girls, friends, girlfriends, Xbox, being physically connected to your phone, ignoring your parents, sleeping a lot, staying up as late as you can etc.
The team/family will evaluate things daily, weekly and decide next steps based on what is presented to us via new trials and/or Logan’s condition.
His last experimental treatment/infusion was on December 21st. In order to qualify for other trials one of the criteria is that other experimental drugs are out of his system. This particular drug takes up to 80 days. This puts us about the first week of March.
We still can move forward with the antibody treatment at any point as this is not considered experimental. The goal/hope of doing this as stated in previous blogs would be to hopefully stabilize the cancer. The downside is he feels awful for as much as 3 weeks and it may not do anything.
Right now one day at a time enjoying family and friends…..
We have met with Logan’s team and at this point don’t know what to do.
Options are to have Logan do the antibody treatment again with 1/2 the chemo but this treatment possibly could do more harm than good. Doing this again would also DQ him from other trials if available. There is also a small chance this may stabilize the cancer. He would start this on Monday.
Do nothing right now and hope another trial opens up that Logan would qualify for but risk the cancer growing.
Logan is feeling and looking great. I so wish we could just hit the pause button and live life as is.
Whatever the decision we will second guess ourselves….forever.
I wish this heartache and pain onto nobody.
This Wednesday/Thursday we are up at Children’s again getting scans and a bone marrow aspiration to see if we continue in the current study he is in. If you were to conduct a visual scan of Logan you would never guess anything is wrong. He feels and looks great! He actually for the first time in 6+ months went out in public yesterday not wearing a hat! His hair has grown back and he looks amazing.
Holidays were/are continue to be full of mixed emotions.
I will continue to keep everyone posted….Thank EVERYONE for the continued thoughts and prayers and Happy Holidays to you and your family from the Lewis Family.
Good news…Logan qualified for trial explained in last blog post. We start Wednesday. We had a pretty anxious weekend…….as of last Friday his team of doctors were unsure because his thyroid was showing ranges that could disqualify Logan from trial leaving us with limited/no options moving forward.
We did not see our teenage boy most the weekend as he stayed the weekend at a friends staying up all night playing video games. Some normalcy!
Thank you everyone for the thoughts and prayers. Obviously it has been a tough last 19+ hours. Our family is doing fine and are looking this in just another speed bump in Logan’s recovery.
More importantly Logan continues to amaze with his positive attitude. This morning he was commenting on how many of his friends on Instagram were wishing him well and re-posting #loganstrong. He does not talk about it much but really appreciates the support. I warned him he better be ready for lots of hugs at school today and he just smiled his amazing smile.
So what’s next? We are looking at trialing an experiment called ADVL1412. You can click on that to find out more about it. Basically our goal now is to keep the cancer from growing and wait for other options/trials to open up. The trial Logan will be on does not include any chemo so there are minimal side affects and no hair loss. His counts should also not be impacted which will keep him possibly qualified for other trials.
We will be starting this trial next Wednesday, December 7th. We will re-scan the week after Christmas. For him to continue on this trial we cannot see growth/spreading of the cancer.
One day at a time…..
Once again we are at a loss for words. Logan’s cancer is back. Tonight we absorb the news as well as discuss next steps as a family.
Thank you for the thoughts and prayers.
Once again we ask for your thoughts and prayers as Logan goes through his scans both today and tomorrow. Logan is creating his own road map in defeating cancer so everything is literally one day at a time.
We have had a wonderful break from the hospital. Logan has been enjoying lots of time with friends, going to school, and of course LOTS of Xbox.
We want to take this time to thank the team at Keller Williams in Federal Way, WA. They recently had a fundraising event locally that benefits local families in need. They graciously presented us a check yesterday. THANK YOU SO MUCH to the team at Keller Williams!
Logan has been doing/feeling great! He has been going to school and returning to somewhat normalcy. Above are his grades ending his first semester.
Logan’s platelets continue to go up. Last week they were in the 80’s! This means his marrow is working. I can’t recall the last time they were this high. This means the stem cell transfusion we did seemed to work.
After meeting with Logan’s doctor a couple weeks ago we decided to let his body rest and continue to get stronger. His hair is coming in great and he also continues to gain weight.
Since Logan is in uncharted territory and basically creating his own road map to beating cancer we have decided to hold off on more antibody treatment for now. We will re-scan mid next week to make sure cancer is/has stayed away. We will then decide next steps…..
Thank you all for your continued thoughts and prayers…..they are working!
Logan has been feeling great! He is slowly putting on weight and getting stronger. He had a local blood draw on Saturday and his counts are on the rise! This is great news! The doctor even let us cancel the weekly scheduled visit today because of how he Logan is doing. Canceling the appointment is good on two fronts:
1. Logan & mom did not need to sit in traffic for 3 hours for a quick appointment.
2. Logan gets to go to school all day!
So as of right now next scheduled visit will be Monday November 7th to discuss next steps. We think based on his positive results they will have him do another round of antibody treatment around Thanksgiving.
This past weekend Logan was the recipient at an amazing event. Keller Williams of Puget Sound had an auction where we had a chance to share Logan’s bravery. Thank you to everyone who participated!